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Family Forum: Genetic Testing for Kids

Genetic testing for kids is gaining popularity, which side are you on?

Welcome to the Family Forum; your stop for discussion on all of the hot topics that affect families in our community.

Our discussions will be led by valued community members from our Miller Place-Rocky Point, Three Village and Port Jeff Patch sites. They are:

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The Family Forum is designed for moms, dads, grandparents, aunts, uncles and caregivers all to share ideas on topics, questions and ideas involving families in our community. Let's get the discussion going with this week's topic:

What are your feelings on the recent rise in genetic testing on children? Is this beneficial or do the risks outweight the rewards?

All are encouraged to share their thoughts in the comment section below.

Kelly Campanella May 04, 2011 at 09:57 PM
Cheryl, thank you for doing so. I imagine it is difficult at times but am glad that you do so-so that you can help other families facing these tough decisions.
Rosetta Goddard May 04, 2011 at 11:27 PM
I chose to have an amnio with both my sons (I was younger than 35 with my first but other tests came back elevated s o it was recommend.) He was and is fine medically. I chose to have an amnio with my last pregnancy because I was 37 at the time. His amnio came back normal as well. It is a personal choice for every family but I felt that if something came back abnormal my husband and I wanted to be able to face it emotionally after the birth. We are very realistic people and if our children had special needs we wanted to be able to learn enough about the condition before the birth to be the best parents we could be.
JoAnn Tiranno May 05, 2011 at 03:17 PM
When it comes to genetic testing I think the more information you have concerning your families health the better equipped you will be to make an informed decision. That said, genetic testing carries with it, legal, ethical and social implications. Who will be privy to your medically information? How will individuals and families maintain privacy when it comes to employment and insurance companies? How will confidentiality be maintained? Will there be an atmosphere of informed consent between patients and health care providers. Will people be deemed genetically inferior? So many questions, but still it is a personal choice. On a personal note,I was tested and carry the gene for thalassemia B (an inherited anemia), I did decide to also have my daughter tested, luckily she does not carry the gene.
Marian Larson May 10, 2011 at 10:58 AM
The ATP blood test during pregnancy can detect if the baby has spina bifida, a neural tube defect. Due to the amazing advances in medicine, surgeries have been done on fetuses in utero to correct the spina bifida. Certainly something to think about.
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